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Developmental Disabilities Page For information on other medical developmental disorders and other great links try the links below. I have gone to all of the web sites below and have found them to be good sources of information. - Information for Angelman's syndrome-
http://www.ninds.nih.gov/health_and_medical/disorders/angelman.htm government site info on Angelman's 2. Information for other developmental disorders- http://www.dougflutiejrfoundation.org/ Doug Flutie Jr. Foundation for ASD http://medlineplus.gov/ Medline- great info site and resources http://www.ninds.nih.gov/health_and_medical/disorders government health site for medical disorders http://www.dbpeds.org/links/links.cfm?pageref=genetic genetic disorders http://www.acdd.org/Links/conditions/Rare_Disorders.htm rare disorders http://www.rarediseases.org Site to find rare diseases http://www.neuro.wustl.edu/neuromuscular/mitosyn.html Mitochondrial Disorders and other syndromes http://www.people.virginia.edu/~rjh9u/mitochon.html same as above http://www.acf.hhs.gov/programs/pcpid/index.html The President's Committee on Mental Retardation http://www.firstgov.gov/Business/Nonprofit.shtml NonProfit Gateway is a network of links to Federal government information and services. Search a department, such as Health and Human Services, or a topic such as developmental disabilities or mental retardation. http://www.rarediseases.org Rare diseases http://rarediseases.about.com/cs/mitochondrialdis/a/062103.htm mitochondrial diseases http://www.disabilityresources.org/RARE.html Disability Resources guide http://www.nursezone.com Great site for info and research articles on developmental disabilities-click on Pedi specialty: Fragile X etc. http://www.biausa.org Brain Injury Association of America http://www.mbia.net Massachusetts Brain Injury Association http://www.cec.sped.org Council for Exceptional Children http://www.aamr.org/ The Web site of the American Association on Mental Retardation. http://www.ldanatl.org Learning Disabilities Association of America http://www.nimh.nih.gov/publicat/adhd.cfm Info on ADHD/ADD http://www.chadd.org/ CHADD organization/info on ADHD/ADD http://www.edutechsbs.com/adhd/ Medical doctor site on ADHD/ADD http://www.pediatricneurology.com/adhd.htm Pediatricneurology ADHD e-book http://galaxy.einet.net/galaxy/Community/Health/Diseases-and-Disorders/Epilepsy.html Seizure disorders http://www.epilepsy.com/epilepsy/vns.html Info on seizure disorders,vagus nerve stimulation, research, diet and new treatments http://www.vnstherapy.com Cyberonics, Inc- Vagus Nerve Therapy: A wonderful therapy to control seizure activity. clink here: Bulletin Board for more http://www.braininjury.com/diagnostic.html diagnostic tests:BEAM,MRI,PET,EEG etc. http://www.mbia.net MA Brain Injury Association 3. Information on mental health issues of developmental disabilities- http://www.mhaspectsofdd.com http://www.restorationproject.org Created for the mentally ill to help psychiatrically disabled adults to recover, then rejoin the community as a contributing members. 4. CEUs http://healthsoftonline.com Many offerings and on developmental disabilities http://www.ddleadership.org/ online offerings on developmental disabilities http://www.rnceus.com Great nursing site with CEUs -some developmental disability offerings http://www.nursingcenter.com Great nursing site with CEUs -some developmental disability offerings http://www.nurseceu.com/pedi.htm Many offerings, links sites developmental disabilities http://www.medscape.com CEUs and news -Register and go to Nurse Center or search for "Turner's Syndrome" http://www.netce.com CEUs on many subjects, autism and ADD/ADHD http://nursingspectrum.com same http://www.ncf-jcn.org Nurses Christian Fellowship and journal 5. Nursing Care Plans http://www.rncentral.com Great nursing site with nursing care plans that can be applied to special needs http://allnurses.com/_Miscellaneous_Resources/Nursing_Care_Plans/ Great nursing site with nursing care plans that can be applied to special needs http://www.cncplan.com Care plans for 10 per month member fee http://www.careplans.com Care plans 6. A place for parents to find info/links/blog on special needs http://www.mamatude.com Great site to read about special needs subjects for parents http://topics.practical.org/browse/Developmentally_disabled Great site to read about special needs subjects for parents http://www.specialchild.com an online publication dedicated to parents of children with special needs http://www.dis-abilities.com/directy.htm Disabilities Directory http://www.legaldirectory.ws Legal help for those with developmental disabilities 7. Sensory Integration http://mywebpages.comcast.net/momtofive/SIDWEBPAGE2.htm Sensory integration info www.sensoryresources.com/ Sensory integration info 8. Sensory Integration and other developmental disabilities http://www.comeunity.com/disability/sensory_integration/index.html Sensory integration info www.sensoryresources.com/ Sensory integration info 9. Immunizations http://www.immunizationinfo.org Immunization Information http://www.state.ma.us/dph/ Department of public health MA,US http://www.state.ma.us/dph/cdc/epii/imm/imm.htm#school Immunization schedule for school health http://www.state.ma.us/dph/cdc/epii/imm/school_req/vpdexluguide.htm Immunization exemption guide 10. Vaccine Information www.aap.org American Academy of Pediatrics (AAP) www.aap.org/family/vaccine.htm American Academy of Pediatrics (AAP) www.nursingworld.org/anf/innuact.htm American Nurses Association (ANA) www.idsociety.org Infectious Diseases Society of America (IDSA) www.ecbt.org Every Child by Two Association www.immunize.org Immunization Action Coalition www.vaccinesafety.edu/ Institute for Vaccine Safety-Johns Hopkins University www.immunizationinfo.org National Network for Immunization Information (NNII) www.pkids.org Parents of Kids with Infectious Diseases (PKIDS) www.vaccine.chop.edu Vaccine Education Center-Children's Hospital in Philadelphia www.cdc.gov Centers for Disease Control and Prevention (CDC) www.cdc.gov/nip National Immunization Program (NIP) 11. Genetic Disorders- http://dir.jayde.com/cgi-bin/member Sign up to be a member and you will be able to use the vast data base http://dir.jayde.com/cgi-bin/dirpage.pl/health/conditions_and_diseases/genetic_disorders Great search engine
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